Histiocytosis - Finding a Cure

New video from the Histiocytosis Associate of America (HAA). The the opening line "I think it's very difficult to be the parent of a child with a life threatening illness" just might win the understatement of the year award. Here are some of the facts that they don't give in the video:

• HLH affects 1.2 in 1,000,000 children under the age of 15 (i.e. it is very rare).
  
• HLH only 50% of children diagnosed with HLH will survive 5 years (Connor was one of the other 50%).
• HLH is an orphan disease and receives no federal funding for research (this makes the work of the HAA very important).